Asher is a wonderful, beautiful miracle! We are so blessed to have him! He is our little (well not so little now) miracle, a blessing from God! So why is it that I end up in tears? Asher is healthy, and for the most part happy! He loves to dance and sing! He loves to blow raspberries and have them blown on his tummy! He is so smart...he says mamma, didi (a version Daddy), Daddy, Ney (short for honey), Hi, Hello, Bye, milk, more, no, amma (short for grandma), umpa (short for grandpa), Eric, and Laila. He copies more and more words every day! What a miracle that is!
He sleeps through the night for the most part and is a good eater now mostly eating solid whole foods like carrots, peas, meats, bananas, apples and other finger foods. He is very independent in eating and wants to be able to feed him self so he has been off the mushy food for a little over a month and a half now. Such a blessing to be able to cut up an apple for him for snack and have him sit there and eat it. To go from having trouble drinking at first to being able to do this is such a huge blessing and such a miracle. We know so many other NICU babies who are having trouble with this. What a blessing it is for Asher not to have any problems with eating now.
Asher really really really wants to walk. He didn't crawl until between eight and nine months... but now at 10 he sees others walking and wants to be doing the same. He picks himself up on anything he can. We even saw him standing up once just using some thing to push off of. He can stand for a little bit before his bum hits the floor... longer if he has one hand on something... shorter if he decides he needs to be dancing. His dancing is so cute... he does a side to side head bob and actually has really good rhythm! Such a good baby! He loves to be snuggled and snuggled he is!
The longest I have been away from Asher so far was to watch a movie with Chris. I am not good at leaving Asher. I think this has to do with losing so many others... especially baby Nels. I don't want to miss out on any time with Asher. I know that this is going to have to change eventually and that I will need to get my own life and not smoother his. But I want to treasure the time I have with him.
We have seen so many go through the pain of losing a child. It is heart breaking and devastating. Two years ago today I was put in the Hospital with baby Nels. I had gone in for a normal ultrasound because I was measuring big and was admitted to the hospital not knowing what was going on. I was 29 weeks along with him when we found out he had PUV. It would take weeks of hospitalization before we realized what this really meant for our precious little boy. We were told many different things... but one doctor told us straight up... if his lungs were too small he could not live. I hated that! I refused to believe that! We had people around the world praying for him for a miracle! I believe in miracles! I have seen them and wanted one so bad for Nels. During that time in the hospital I tried to stay positive and tried to do everything I could to give Nels the best chance of survival. We decided shortly before he was born that we would do comfort care with him because of the last ultrasound he had. It showed that his lungs were so small and not developed enough to support life. One doctor had told us that they could have kept him alive a little bit longer on machines but that it would be painful for him because of his lungs. I didn't want to put him through that pain.... but every day I wish that I would have had more then an hour with my precious son. Sitting here right now writing this I have a lump in my throat and tears streaming down my face. It has been two years.... I can't change anything. My precious boy is in heaven. All I can do is be thankful that I did have time with him. So parents do not even get that.
To make things a little worse... my hospitalization last year started on today as well! For two years I lived all of October and parts of September and November at the University of Washington Medical Center. Last year was a harder hospital stay with swine flu and preeclampsia. I spent two weeks alone in quarantine for something I got in the hospital. Then I had constant contractions until Asher was born. His contractions actually started in July. At first few and far between.... but then in September they became more regularly spaced... but too close together to do anything. I have this weird feeling inside right now that I am missing out by not being there this year. It is almost like a post-traumatic issue. It is hard to explain. I just feel weird being out in the real world this year.
Emotionally this year I have had my ups and my very low downs. I get excited for every new thing Asher does and then cry a little inside because baby Nels did not get to experience that. I hope that this doesn't happen for the rest of Asher's life. I feel bad because I wish that Asher and Nels could have known each other and I wish that Asher's twin was here with him so that he would have a sibling.
I decided long ago that I would not try to have any more children after 40. Now I am rethinking this. This year we (I) had wanted to try and have another child so that Asher would not be alone when we are gone. Chris doesn't think it is necessary for Asher but would like another child for the sake of having another child to treasure. With the loss of another in May very early miscarriage those dreams of mine were crushed. Since then I have not even had a period. I know that this is probably due to my breast feeding Asher but it bummed me out... because I turn 40 in December. Even if I did get pregnant again there is no way I could have the child before 40. I know that we have been blessed with our two children who were born Nels and Asher and that some people don't even get that blessing. I should be so thankful for that so why do I feel like something is missing.
I don't know what to do.... I do know what to do! I hate that I feel torn! I know that I need to just concentrate on Asher and celebrate his beautiful life. He is a precious treasure! I love you Asher! Mommy is going through some hard emotions right now but I promise I will be better soon. I know I have so much to look forward to in your life but I also know that I must treasure each and every step along the way! I love you so much!
Abba, Heavenly Father, I come to you with mixed emotions today. I am struggling to get out of the past and live here and now. Lord thank you for your blessings, both Nels and Asher! They are treasures that you entrusted me with. I am so blessed that you trusted me with them. Thank you for all you have done in our lives. Help me to be thankful and to celebrate Asher's life. Lord if it is your will we would like to have a sibling that is alive for Asher... but we know that it would have to be a miracle from you. Lord God heal my heart and help me to honor baby Nels and not bring shame by my sorrow. Lord I know that Nels's life, though short has made an impact on so many. I am so thankful that you have given us the ability to reach out to others through all that we have been through. Help me continue to be able to help others through things they are going through. Be with me, lead me and guide me. In Jesus name, amen!